Resource List

We provide this resource page as a courtesy to our members. While all attempts have been made to keep the information provided here accurate and up-to-date, please use your judgment when referring families to resources. NAPSW neither supports nor recommends these organizations. If you notice incorrect information, or have resource suggestions, please contact [email protected]. Resources that are non-profit, nationally relevant and in line with the mission of NAPSW will be considered. NAPSW Standards of Practice are shared, but are only able to be printed by active NAPSW members. 


Adolescent Pregnancy

NAPSW Standards for Adolescent Pregnancy


Adoption

NAPSW Standards for Adoption

Adoptive Families

Adoptive Families is an award-winning resource for parents-to-be navigating the adoption process and for parents raising children through adoption.
www.adoptivefamilies.com

Child Welfare Information Giveaway

Child Welfare Information Gateway promotes the safety, permanency, and well-being of children, youth, and families by connecting child welfare, adoption, and related professionals as well as the public to information, resources, and tools covering topics on child welfare, child abuse and neglect, out-of-home care, adoption, and more.
www.childwelfare.gov

National Council for Adoption

Passionately committed to the belief that every child deserves to thrive in a nurturing, permanent family, NCFA’s mission is to meet the diverse needs of children, birth parents, adopted individuals, adoptive families, and all those touched by adoption through global advocacy, education, research, legislative action, and collaboration.

www.adoptioncouncil.org

Tapestry Books

Adoption Books and Resources
www.tapestrybooks.com


Ambiguous Genitalia

InterACT

interACT uses innovative legal and other strategies, to advocate for the human rights of children born with intersex traits.
https://interactadvocates.org

Katharine Dalke, MD, MBE

Assistant Professor at Penn State recommended by NAPSW member as expert in this area. Her webpage has relevant articles and resources. 
www.pennstate.pure.elsevier.com/en/persons/katharine-dalke

 


Anti-Racism

Black Lives Matter

A global organization in the US, UK, and Canada, whose mission is to eradicate white supremacy and build local power to intervene in violence inflicted on Black communities by the state and vigilantes.

www.blacklivesmatter.com

Boston University Center for Antiracist Research

The mission of the Boston University Center for Antiracist Research is to convene researchers and practitioners from various disciplines to figure out novel and practical ways to understand, explain, and solve seemingly intractable problems of racial inequity and injustice.

www.bu.edu/antiracism-center

Recommended Reading

How to Be an Antiracist
by Ibram X. Kendi

White Fragility: Why It's So Hard for White People to Talk About Racism
by Robin DiAngelo

Between the World and Me
by Ta-Nehisi Coates

The New Jim Crow: Mass Incarceration in the Age of Colorblindness by Michelle Alexander

  


Bereavement/Grief and Loss

NAPSW Standards for Bereavement

Compassionate Friends

Through a network of almost 700 chapters with locations in all 50 states, as well as Washington DC, Puerto Rico, and Guam, The Compassionate Friends has been providing support to bereaved families after the death of a child for four decades.
www.compassionatefriends.org

Cuddle Cot

cuddle cot is a cooling pad which can be inserted into any type of baby bed – from Moses baskets to carry-cots, prams to cots – to allow the families of babies who have passed away time to grieve. Further information is available via a browser search on the internet. 

Journey of Hearts

An online healing place for anyone grieving a loss.
www.journeyofhearts.org


Breastfeeding

La Leche League International

Our Mission is to help mothers worldwide to breastfeed through mother-to-mother support, encouragement, information, and education, and to promote a better understanding of breastfeeding as an important element in the healthy development of the baby and mother.
www.llli.org


Cancer

Hope for Two: The Pregnant With Cancer Network

Offers free support for women diagnosed with cancer while pregnant. We connect women who are currently pregnant with cancer with other women who have experienced a similar cancer diagnosis.
www.hopefortwo.org


Cerebral Palsy

Cerebral Palsy Guidance

Cerebral Palsy Guidance provides information, guidance and assistance to parents of a child with cerebral palsy.
www.cerebralpalsyguidance.com

Cerebral Palsy Guide

Cerebral Palsy Guide provides free educational materials, financial options and support to help those across the country affected by this disorder.
www.cerebralpalsyguide.com

Cerebral Palsy Group

Provides free educational information and support to those who have been affected by cerebral palsy and other developmental disabilities.
www.cerebralpalsygroup.com


Child Abuse/Neglect and Welfare

Child Welfare Information Gateway

Connects child welfare and related professionals to comprehensive information and resources to help protect children and strengthen families.
www.childwelfare.gov

Child Welfare League of America

The oldest child welfare organization in the United States. The CWLA is the trusted authority for professionals who work with children and the only national organization with members from both public and private agencies, providing unique access and influence to all sectors of the children’s services field.
www.cwla.org

Article: Frank Ainsworth & Patricia Hansen (2012)
Doing Harm While Doing Good: The Child Protection Paradox
Child & Youth Services, 33:2, 146-157
DOI:10.1080/0145935X.2012.704787
http://dx.doi.org/10.1080/0145935X.2012.704787


Congenital Diaphragmatic Hernia

Cherubs

The Association of Congenital Diaphragmatic Hernia research, awareness and support

https://cdhboards.org


Cord Blood

Cord Blood Banking

Our organization promotes awareness for current and future stem cell treatments, and we are committed to being the most comprehensive and up-to-date resource available for mothers and families considering cord blood.
www.cordbloodbanking.com


COVID-19

American Psychological Association

Self-Care for Healthcare Professionals: https://www.apaservices.org/practice/ce/self-care/health-providers-covid-19

March of Dimes Update

https://www.marchofdimes.org/complications/coronavirus-disease-covid-19-what-you-need-to-know.aspx

National Association of Social Workers

Ethics During Pandemic: http://www.socialworkblog.org/practice-and-professional-development/2020/04/social-work-ethics-during-the-time-of-pandemic/

Implications for Vulnerable and Marginalized Populations: https://www.socialworkers.org/LinkClick.aspx?fileticket=U7tEKlRldOU%3d&portalid=0

Hospital Social Work During Pandemic: https://www.socialworkers.org/News/Social-Work-Talks-Podcast/EP50-Hospital-Social-Work-During-the-Coronavirus-Pandemic

Telehealth: https://www.socialworkers.org/Practice/Infectious-Diseases/Coronavirus/Telehealth

 United Way COVID Response

United Way Worldwide's COVID-19 Community Response and Recovery Fund supports communities by helping local United Ways respond, and by ensuring people get accurate information. 211, the information resource is fielding calls mostly for food, financial assistance and housing. 
https://www.unitedway.org/recovery/covid19#

 Disability

Through the Looking Glass

A nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community based nonprofit organization, which emerged from the independent living movement.
www.lookingglass.org


Domestic Violence

National Coalition Against Domestic Violence

The National Coalition Against Domestic Violence (NCADV) is the voice of victims and survivors. We are the catalyst for changing society to have zero tolerance for domestic violence. We do this by affecting public policy, increasing understanding of the impact of domestic violence, and providing programs and education that drive that change.
www.ncadv.org

 National Domestic Violence Hotline

At the National Domestic Violence Hotline, our highly trained expert advocates are available 24/7 to talk confidentially with anyone in the United States who is experiencing domestic violence, seeking resources or information, or questioning unhealthy aspects of their relationship.
1-800-799-SAFE (7233)
www.thehotline.org


Ethics

NAPSW Code of Ethics

Schwartz Center for Compassionate Healthcare

Through innovative programs, education and advocacy, the Schwartz Center is working to support caregivers, healthcare leaders and others and bring compassion to every healthcare experience.

https://www.theschwartzcenter.org


Family Centered Care

Institute for Patient- and Family-Centered Care

IPFCC advances the understanding and practice of patient- and family-centered care. In partnership with patients, families, and health care professionals, IPFCC seeks to integrate these concepts into all aspects of health care. Better Together: Partnering with Families, equips hospital leaders with the rationale, tools, and support needed to change visiting policies.
www.ipfcc.org


Financial Assistance

Caiden’s Hope

At Caiden's Hope we strive to help families with the incurring fees associated with a NICU stay such as: parking, travel, and other expenses.
www.caidenshope.org

Colette Louise Tisdahl Foundation

This organization is striving to improve the outcomes of pregnancy, childbirth, infant health, and loss through financial assistance to families who are struggling with pregnancy complications and premature birth.
www.colettelouise.com


Gastroschisis

Avery's Angels Gastroschisis Foundation

Created to support gastroschisis research, awareness and support for patients and families affected by gastroschisis.

https://averysangels.org


 Group B Strep

Group B Strep Association

The Group B Strep Association (GBSA) is a non-profit organization that was formed in June of 1990 by parents whose babies died from this devastating infection.
www.groupbstrep.org


HIE

Hope for HIE

A resource for families whose children have been diagnosed with hypoxic ischemic encephalopathy (HIE).
www.hopeforhie.org


HIV/AIDS

National Center for HIV/AIDS, Viral Hepatitis, STD, & TB Prevention

Maximizes public health and safety nationally and internationally through the elimination, prevention, and control of disease, disability, and death caused by HIV/AIDS, viral hepatitis, STDs and TB.
www.cdc.gov/nchhstp


Hospice and Palliative Care

Hospice Foundation of America

HFA is a trusted source of information on end of life, hospice care and grief. Throughout this site you will find information about living with advanced life-limiting illness, options for care and helpful resources for caregivers.

https://hospicefoundation.org

 

National Hospice and Palliative Care Organization

As the leading organization representing hospice and palliative care providers, NHPCO works to expand access to a proven person-centered model for healthcare—one that provides patients and their loved ones with comfort, peace, and dignity during life’s most intimate and vulnerable experiences. 

https://www.nhpco.org

  


Hydrocephalus

The Hydrocephalus Association

The mission of the Hydrocephalus Association is to promote a cure for hydrocephalus and improve the lives of those affected by the condition. They provide information as well as a support network to families impacted by hydrocephalus.

www.hydroassoc.org


Infertility

NAPSW Standards for Infertility

Resolve: The National Infertility Association

A non-profit, charitable organization, who works to improve the lives of women and men living with infertility
www.resolve.org

IVF Authority

IVF Authority specializes in IVF data analysis and mining. It provides In Vitro Fertilization(IVF) one stop resources and assisted reproductive technology education. The most comprehensive IVF web portal provides the quality tools and information.
www.ivfauthority.com

Your Fertility Friend

We help prospective patients understand what their options may be for in vitro fertilization. Browse our site resources, FAQ’s, and online tools to start your education on IVF.
www.yourfertilityfriend.com


Legal

Family Law

Provides resources and state-by-state information for family law questions
www.findlaw.com

Legal Service Corporation

Legal Services Corporation (LSC) is an independent nonprofit established by Congress in 1974 to provide financial support for civil legal aid to low-income Americans. LSC promotes equal access to justice by providing funding to 132 independent non-profit legal aid programs in every state, the District of Columbia, and U.S. Territories. LSC grantees serve thousands of low-income individuals, children, families, seniors, and veteransLegal Services Corporation
https://www.lsc.gov

National Advocates for Pregnant Women

National Advocates for Pregnant Women (NAPW) is a non-profit organization that works to secure the human and civil rights, health and welfare of all people, focusing particularly on pregnant and parenting women, and those who are most likely to be targeted for state control and punishment - low income women, women of color, and drug-using women.
www.advocatesforpregnantwomen.org


LGBTQAI

The World Professional Association for Transgender Health

A non-profit, interdisciplinary professional and educational organization devoted to transgender health.
www.wpath.org

  


Maternal Mental Health

NAPSW Standards for PostPartum Depression

Edinburgh Postnatal Depression Scale

The Edinburgh Postnatal Depression Scale is a 10-item questionnaire that was developed to identify women who have postpartum depression. It is available in multiple languages. 

Massachusetts General Hospital Center for Women’s Mental Health

This website provides a range of current information including discussion of new research findings in women’s mental health and how such investigations inform day-to-day clinical practice.
www.womensmentalhealth.org

PostpartumDepression.org

Information, support and treatment options for families struggling with postpartum depression.
www.postpartumdepression.org

Postpartum Support International

Dedicated to helping women suffering from perinatal mood and anxiety disorders, including postpartum depression, the most common complication of childbirth.
www.postpartum.net

Seleni Institute

The Seleni Institute is a nonprofit organization that was founded by Nitzia and George Logothetis in 2011 to destigmatize and transform mental health and wellness by addressing real-life issues that challenge the emotional health of women, men, and their families.
www.seleni.org


 Mindfulness

Meditations for Pregnant and NICU Parents

Free, 15 minute meditations created especially for pregnant women and NICU families during this time
https://sagenestyoga.buzzsprout.com

 


Multiples

Multiples of America (aka the National Organization of Mother of Twins Clubs)

Connecting and Supporting Multiple Birth Families
www.multiplesofamerica.org

Mothers of Multiples (aka MOMS):

Search for local chapters as many exist


Necrotizing Enterocolitis (NEC)

NEC Society

The NEC Society is the world’s first and only activist-based, clinician/family collaborative organization specifically focused on the understanding, prevention and treatment of NEC. The NEC Society was launched in 2014 and is spearheaded by two mothers who lost their own babies to NEC.
www.necsociety.org


 

Neonatal Abstinence Syndrome (NAS)

NAS is a group of conditions caused when a baby withdraws from certain drugs (most often opioids) he’s exposed to in the womb before birth.

 https://www.marchofdimes.org/complications/neonatal-abstinence-syndrome-(nas).aspx

 


NICU Information

NAPSW Standards for NICU

My NICU Network

Online continuing education developed by parents and providers

NICU Now

Hand to Hold’s audio support series for parents who are in the NICU. Free podcast available to support families without leaving their baby’s bedside.
www.handtohold.org/support/nicu-support/nicu-now-podcast

Your NICU Baby

Your NICU Baby is a subscription-based, on-demand educational video library that parents can watch in the NICU and online at home.
www.yournicubaby.com


NICU Parent Support

Graham's Foundation

Graham’s Foundation delivers support, advocacy and research to improve outcomes for preemies and their families.
www.grahamsfoundation.org

Hand to Hold

Hand to Hold helps families before, during, and after a NICU stay and infant loss by providing powerful resources for the whole family, and most importantly, one-on-one mentoring from someone who has been there.
www.handtohold.org

March of Dimes: Share Your Story

A community to share your story with prematurity, birth defects or loss

https://share.marchofdimes.org

NICU Helping Hands

NICU Helping Hands developed their five key programs to meet the needs of families throughout their journey. These programs include Project NICU, One-on-One Mentoring Program, Family Assistance Program, NICU Mom Connect, Angel Gown® Program.
www.nicuhelpinghands.org

 Support 4 NICU Parents

Developed by the National Perinatal Association as a resource for parents and professionals. It is a resource for comprehensive NICU family support.
www.support4nicuparents.org

 


NICU Apps

MyPreemie (Graham's Foundation)

PeekaBooICU

My NICU Baby (March of Dimes)

 


Obstetrics

NAPSW Standards for Obstetrics

My Perinatal Network

Online continuing education developed by parents and providers

http://www.myperinatalnetwork.org/my-perinatal-network.html


Preeclampsia

Preeclampsia Foundation

Our Purpose is to improve the outcomes of hypertensive disorders of pregnancy by educating, supporting and engaging the community, improving healthcare practices, and finding a cure.

https://www.preeclampsia.org


Pregnancy and Pregnancy Termination

A Heartbreaking Choice

Supports women who have made the “Heartbreaking Choice” to terminate a much wanted pregnancy. For those who have undergone a pregnancy termination due to a poor prenatal diagnosis, problems with their own health, or for the health of another fetus (selective reduction).
www.aheartbreakingchoice.com

 Planned Parenthood

Planned Parenthood is one of the nation’s leading providers of high-quality, affordable health care, and the nation’s largest provider of sex education.
www.plannedparenthood.org

National Advocates for Pregnant Women

 Works to secure the human and civil rights, health and welfare of all women, focusing particularly on pregnant and parenting women, and those who are most vulnerable to state control and punishment – low income women, women of color, and drug-using women.
 www.advocatesforpregnantwomen.org


Prematurity

March of Dimes

Helps moms have full-term pregnancies and researches the problems that threaten the health of babies.
www.marchofdimes.com

Premature Baby

Support preemie parents by providing information on prematurity and preemie care.
www.prematurity.org


Perinatal Professional Association

AWHONN: Association of Women's Health, Obstetric and Neonatal Nursing

AWHONN's mission is to empower and support nurses caring for women, newborns, and their families through research, education, and advocacy.

https://awhonn.org

National Association of Neonatal Nurses

NANN is the organization of Neonatal Nurses that provides education (journal and conference) as well as advocacy and networking opportunities for nurses working in Neonatal profession

http://nann.org

National Perinatal Association Professionals

 NPA gives voice to the needs of pregnant women, infants, their families and their healthcare providers by bringing together stakeholders that collectively can have the greatest positive impact on perinatal care in the United States.
www.nationalperinatal.org


Safe Sleep

American Academy of Pediatrics Safe Sleep Recommendations
https://www.aap.org/en-us/advocacy-and-policy/aap-health-initiatives/safe-sleep/Pages/Safe-Sleep-Recommendations.aspx
  


Social Security Administration/SSI

This booklet is for the parents, caregivers, or representatives of children younger than age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments.
www.ssa.gov/pubs/EN-05-10026.pdf


Social Work

NAPSW Field Education Standards


National Association of Social Workers

NASW works to enhance the professional growth and development of its members, to create and maintain professional standards, and to advance sound social policies.
www.socialworkers.org

NASW Social Work Talks Podcast

NASW Social Work Talks podcast gives us an opportunity to explore topics that social workers care about and to hear from social work experts and practitioners.
 https://www.socialworkers.org/news/nasw-social-work-talks-podcast

Society for Social Work Leadership in Health Care Support

Dedicated to promoting the universal availability, accessibility, coordination, and effectiveness of health care that addresses the psychosocial components of health and illness.
www.sswlhc.org

The Social Work Podcast

Provides information on all things social work, including direct practice (both clinical and community organizing), research, policy, education… and everything in between.

https://socialworkpodcast.blogspot.com

University of Buffalo Social Work Podcast

inSocialWork® is the podcast series of the University at Buffalo School of Social Work. The purpose of this series is to engage practitioners and researchers in lifelong learning and to promote research to practice and practice to research. inSocialWork® features conversations with prominent social work professionals, interviews with cutting-edge researchers, and information on emerging trends and best practices in the field of social work

www.insocialwork.org

 


Spina Bifida

Spina Bifida Association

Serves adults and children who live with the challenges of Spina Bifida by providing education, advocacy, research, and service.
www.spinabifidaassociation.org


Substance Use

Alcoholics Anonymous

Alcoholics Anonymous is an international mutual aid fellowship founded in 1935 by Bill Wilson and Dr. Bob Smith in Akron, Ohio. AA's stated "primary purpose" is to help alcoholics "stay sober and help other alcoholics achieve sobriety".
www.aa.org

Moderation Management

Moderation Management (MM) is a behavioral change program and national support group network for people concerned about their drinking and who desire to make positive lifestyle changes. MM empowers individuals to accept personal responsibility for choosing and maintaining their own path, whether moderation or abstinence.

www.moderation.org

Narcotics Anonymous

Narcotics Anonymous is a global, community-based organization with a multilingual and multicultural membership. NA was founded in 1953, and members hold nearly 67,000 meetings weekly in 139 countries today.
www.na.org


National Organization on Fetal Alcohol Syndrome

NOFAS prevents alcohol use during pregnancy and supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs).
www.nofas.org


Surrogacy

NAPSW Standards for Surrogacy


Resolve: The National Infertility Association

US infertility association site providing information for patients, professionals and media.
www.resolve.org/family-building-options/surrogacy


Trauma Informed Care

Caring Essentials Trauma Informed Practice Certification Program (NAPSW Members receive a discount!)

Caring Essentials Trauma Informed Care Programs & Certifications

Trisomy 21

National Down Syndrome Society

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.
www.ndss.org 
 

Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)

SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders.
www.trisomy.org

Trisomy 18 Foundation

Trisomy 18 Foundation helps parents create new dreams for their child and for their families.  Hope is at the heart of the Trisomy 18 Foundation.

https://www.trisomy18.org


Women's Health

Pelvic Rehab

Pelvicrehab.com is a directory for patients searching for pelvic rehabilitation practitioners.